Taking Flight

Red Balloon

Some of us think holding on makes us strong; but sometimes it is letting go.

Hermann Hesse

Nostalgia.  The very real sense of “homesickness” for things or situations of the past can appear when you least expect it.  It can come in the form of a scent … a sunset … a book … or even a song.  Often, I wonder if the chemo “fog” that so magically formed in my brain has instead given rise to a deeper level of nostalgia—more vivid recall of long ago, forgotten memories.  I find it laughable that mid-sentence during a conversation, my brain can lose focus; yet during a morning “solo” jam session in the shower, the lyrics of a song can send my mind reeling down memory lane on a fast track to childhood.  This particular morning in the shower, lyrics from a song brought to mind a recurring dream I had as a child.  It came to me with such clarity, I could actually recall the emotions I felt as a child … awe coupled with fear.  There I stood, holding a big red balloon.  The very balloon I was enamored by in the dream was also the very object that brought me indescribable fear.  Fear of flight.  There was the fear that as I held tight to the balloon—it  would carry me away … while an equally fearful sense that at any given moment my hand could let go of the balloon and it would take off without me.

Life takes us by surprise and orders us to move toward the unknown—even when we don’t want to or when we think we don’t need to.

During my recent trip to Dana-Farber, I was confronted boldly with the ugly face of fear.  Fear of the unknown … fear of new beginnings … fear of letting go.   

Nine plus months have passed since I was plunged into this unknown, unexpected realm of a stage III cancer diagnosis.  My nonstop mission to do whatever necessary to put this thing in my rear view has sent me on a journey filled with lifejackets in a sea of doubt and confusion.   The lifejackets of chemo, bilateral mastectomy and radiation therapy have kept me afloat, making hope an easier vision.  Now I am left to tread these unchartered waters with Tamoxifen, or as some refer to it:  the little poisonous pill—one I will (hopefully) be swallowing daily for the next ten years.  Needless to say, I left my oncologist that day with little comfort as her simple advice spoke angst in my heart.  She advised me from this point forward I need to be mindful of pain that appears suddenly or lasts longer than usual, any shortness of breath or recurring headaches … etc.  Basically, I left the exam room that day feeling powerless, lonely and filled with a new fear—the uneasiness of fear itself.  Will it carry me away like that big red balloon in my dream so many moons ago?

I once read that love is what we were born with, while fear is what we learned here.  When you begin an unknown pilgrimage … you must not be afraid.  You need to have ample courage to make mistakes.  God uses the tools of disappointment, defeat, and despair to show us the way.

Though I feel as though somewhere along the way, I’ve lost myself a bit, I’m growing and learning to accept suffering as a vital life force flowing through me.  I refuse to consume my present and future moments with the fear of the unknown.  Yes—I’m certainly a work in progress, making many mistakes along the way, but I need to let go … sending my red balloon of fear aloft, knowing that letting go will give me victory moment by moment.

I’m beyond grateful for the outpouring of love and support so many have showered on me.  Now more than ever, I welcome and yearn for your prayers and words of encouragement.

Loads of Love … in hope,

Nicole

For God did not give us a Spirit of fear but of power and love and self-control. 

2 Timothy 1:7

What was I Saying?

your brain

(originally posted on my CaringBridge page on 2/7/13)

I’ve a grand memory for forgetting. 

 ~Robert Louis Stevenson

So yes, I’ve heard about it, read about it, and even laughed about it—but never really knew if this phenomenon was a realthing or just a sad excuse to drop the ball on one’s many obligations that never end.  Chemo-brain.  There ya have it.  Thirty days into treatment, week 5 of chemo . . . yup, chemo-brain exists.

Knowing me as many of you do, it’s no mystery that my feisty, type A-ish personality leads to over-multi-tasking and biting off more than I can chew . . . well I still manage to chew it, but my small mouth is really full in the process.  Anyway, that’s who I am.  God’s sense of humor showed when designing me.

Though I thrive on spontaneity in the realm of fun, I also lean on order.  Prioritizing, cleaning, planning, and organizing.  These things calm me.  However, in the process of all my “ordered spontaneity”— I always manage to lose something along the way . . . usually that would be my keys.  Now some of you (no comments from the peanut gallery) know thatadditionally, I’m notorious for going off on tangents.  Y’know, skipping from one story to the next seamlessly (to me) with the bonus goal of:  more thoughts achieved in less time.   It’s also quite fun watching people get dizzy keeping up with my “speed-dialogue.” 

Now considering that all of these lovely “Nicattributes” were PRE-chemo, I basically headed into this thing with a deficit.  Case in point:  Pre-chemo Nicole might head out the door realizing she forgot her phone somewhere.  She then narrows it down to her last two locations and boom, finds it . . . done.  On her way.  Chemo-brain Nicole forgets the phone, forgets where she was last, forgets what she’s even looking for, finally remembers, then after a 15-minute search, realizes it’s IN HER HAND.

THAT is my new normal.

I had to laugh when researching this very real cognitive “brain fog” associated with chemotherapy because many of the tips they offer to work around the short-term memory loss, usually involve reminders like sticky notes, detailed grocery lists and calendar organization.  Yeah. Okay.  First I have to rememberwhere the sticky notes and calendar live.

Fortunately, according to the latest research:  “chemo-brain is almost always temporary.  Patients usually regain their full cognitive abilities within a year or two after chemotherapy treatment ends.”  Wuh?  Seriously?  Apparently this thing called cancer takes and takes and takes some more—even my limited brain cells.  Yay.

So where was I?  Oh yeah, today is my 5th chemo session.  I’m sitting here with my one and only, dear ol’ Dadders, who is very used to my tangents, so by taking a little time to blog as he’s plugging away on his IPad = me SAVING him from the torture that will surely come if I pursue one of my many thought patterns.

Now, if I could find one word to describe my Dad . . . I would no doubt lose it with my keys and phone!  No really, one word would be tough, but the only thing that comes to mind is: Constant.   My Dad is a constant source of encouragement,constant model of clarity and reason, constant 10-fold Prince in thoughtful acts of generosity and kindness, and a constantreminder of the amazing love of a Father . . . Dad would undoubtedly walk through fire for his family.  He’s in a league of his own.

As for me:  I’m up . . . I’m down . . . I’m irritable . . . I’m elated.  But most of all I’m filled with Hope, one day at a time.  It’s real.  Healing is found there, brighter futures are found there . . . sanity is found there.

As for today, at Dana-Farber . . . right this very moment, being infused in my heated massage chair (aren’t you so jealous?) . . . it is here, by golly . . . where the magic JUICE is found.  Bring it!  I’m praying right now for some more shrinking miracles.  Though that doesn’t change what I have to go through or what my prognosis is . . . it does keep my Hope bank satiated—satisfied for today.

Keep praying for this wandering chemo-fog-brained redhead (sorry, I mean super-uncomfortable synthetic head) to stay steady and sure, never wandering too far off the path of Hope and Truth.

Ummm . . . okay, I’m done for now.  I think?